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“This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment.” Editor: Steven K. Kapp

“Neurodiversity is the diversity of human brains and minds, the infinite variation in neurocognitive functioning within our species. The Neurodiversity Paradigm is an emergent paradigm in which neurodiversity is understood to be a form of human diversity that is subject to the same social dynamics as other forms of diversity (including dynamics of power and oppression).”
Download a pdf copy: The Neurodiversity Paradigm

What is Sensory Integration?

A story about sensory health, postural development and the parent-child relationship
STAR Institute
Sensory processing (originally called “sensory integration dysfunction” or SID) refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. 

Ask an Autistic #1 – What is Stimming? – Amythest Schaber
What is stimming? Why do Autistic people do it? What are some common stims among the Autistic population? What the heck is “proprioception”? Answers to all of these questions (and a surprise appearance from my cat!) in the first episode of Ask an Autistic!

‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming
Kapp SK, Steward R, Crane L, et al. ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming. Autism. 2019;23(7):1782-1792. doi:10.1177/1362361319829628

Quiet Hands – Julie Bascom

Subject Matter Articles

Neurodiversity is the range of differences in individual brain function and behavioral traits, regarded as part of normal variation in the human population.

Neurological differences can include such differences as dyspraxia, dyslexia, Attention Deficit Hyperactivity Disorder (ADHD), Autism, Down Syndrome, and others. Acquired neurodivergence can include such things as traumatic brain injury, post-stroke, Alzheimer’s, dementia, and Parkinson’s.

A NEURODIVERSITY FACTS AND MYTHS PRIMER – THINKING PERSON’S GUIDE TO AUTISM
Increasing Neurodiversity in Disability and Social Justice Advocacy Groups – ASAN (Autistic Self Advocacy Network)
Neurodiversity: Some Basic Terms & Definitions – NEUROCOSMOPOLITANISM: DR. NICK WALKER’S NOTES ON NEURODIVERSITY, AUTISM, & SELF-LIBERATION

Psychotherapy Networker – In Consultation: Seeing Children through a Polyvagal Lens. By Mona Delahooke. January/February 2020
“…I came to appreciate the importance of understanding that all behaviors have meaning. Rather than focusing on eliminating them, we need to understand the adaptive purposes they serve for each child.” 

The problem with behaviorism – There are better ways to work with behaviorally challenging children
“The evidence of long-term effectiveness is not available. On the contrary, after 22 years, our country’s schools continue to struggle with restraints, seclusion, suspensions and expulsions. In some cases, these statistics are increasing, even in schools where PBIS is in place. (The PBIS.org website cites the effectiveness of the PBIS framework and lists many references. However, a look at the references reveals that most are not recent, are limited in scope, and do not reflect research about long term outcomes of implementation of PBIS). “

How Teachers Can Take A More Compassionate Approach to Behaviors
“After decades of witnessing these patterns, it was when I studied brain and developmental science that I discovered how behavioral management makes teachers and parents focus on behaviors rather than their causes. Once I began taking a deeper look into what behaviors reveal about what a child needs from relationships and from the environment, I began to see better results. “

Autism and Behaviorism -New Research Adds to an Already Compelling Case Against ABA
“When a common practice isn’t necessary or useful even under presumably optimal conditions, it’s time to question whether that practice makes sense at all.”

Autistic Insights on Meltdowns, Aggression, and Self-Injury

Understanding Autism, Aggression, and Self-Injury: Medical Approaches and Best Support Practices

A checklist for identifying sources of aggression

“Self-Injurious Behaviors” ~ Let’s Discuss

Resources

§482.13(b)(2) The patient or his or her representative (as allowed under State law) has the right to make informed decisions regarding his or her care. The patient’s rights include being informed of his or her health status, being involved in care planning and treatment, and being able to request or refuse treatment.Dec 2, 2011

The Patient Self-Determination Act. A matter of life and death.
Physician Assist. 1995 Mar;19(3):49, 53-6, 59-60 passim.
The Patient Self-Determination Act (PSDA) is a federal law, and compliance is mandatory. It is the purpose of this act to ensure that a patient’s right to self-determination in health care decisions be communicated and protected. Through advance directives–the living will and the durable power of attorney–the right to accept or reject medical or surgical treatment is available to adults while competent, so that in the event that such adults become incompetent to make decisions, they would more easily continue to control decisions affecting their health care. Without advance directives and the proper adherence to such directives, former President Richard Nixon and former First Lady Jacqueline Kennedy Onassis might still be alive today, in persistent vegetative states. This article examines the history of the act, its importance to each individual, the clinical, ethical and legal issues, and the role of health care professionals in effectively implementing and ensuring compliance of the PSDA.

Law for Older Americans – Health Care Advance Directives. What is the Patient Self-Determination Act?

Neurodiversity, Quality of Life, and Autistic Adults: Shifting Research and Professional Focuses onto Real-Life Challenges
This article examines challenges to the quality of life experienced by autistic adults.1 The author, who is an autistic researcher, first shares how a neurodiversity perspective offers an important alternative to the deficit model of autism. Whereas the deficit model portrays autistic people as ill, broken, and in need of fixing, the neurodiversity perspective portrays it as a form of human diversity with associated strengths and difficulties. The article’s discussion then shifts to presenting Schalock’s (2000) quality of life framework as a neurodiversity-compatible lens through which domains of quality of life can be viewed. The article analyzes in detail these core domains in relation to the lives of autistic adults. The author suggests that a collaborative approach between professionals/researchers and autistic adults is needed to develop meaningful solutions to these challenges, and he presents possibilities for collaboration.

Recommended Autistic Voices making a thought-provoking and informative impact: a list compiled by Kieran Rose, SLP Neurodiversity Collective Executive Board Member, Managing Director of Infinite Autism and Chair of The Autistic Cooperative:

Autism Explained Online Summit – FREE TICKET

“The following is an inexhaustive list of Positive of practical Blogs by Autistic people aimed at both parents of Autistic children and newly diagnosed Autistic Adults that will offer insight and understanding to various aspects of being Autistic and also help frame Autism in a way that encourages acceptance from self and others.” – Kieran Rose

Autism Blogs

The Autistic Advocate

Frank L. Ludwig – Autism Appreciation

Autistic Hoya – A blog by Lʏᴅɪᴀ X. Z. Bʀᴏᴡɴ

Neurodivergent Rebel

neurowonderful

Non-Speaking Autistic Speaking

Ollibean – Amy Sequenzia Archives

autisticzebra

The Outcast Post

BorenBlog – Ryan Boren

Autisticate Dalmayne

unstrangemind

Hello Michelle Swan

Un-Boxed Brain

NEUROCOSMOPOLITANISM

Ann’s Autism Blog

AStrangerInGodzone

Actually Autistic Blogs


Specific Blog posts

SilverArabian’s Stuff – Ages of Autism

Tales by the Unexpected – How it Feels

Ragged Edge Online – Critic of the Dawn


Vlogs:

Kieran Rose, The Autistic Advocate

Sara-Jane Harvey, Agony Autie

Christa Holmans, Neurodivergent Rebel

Paul Micallef, Aspergers from the Inside

Amythest Schaber

Examples of positive support sites that showcase Autistic voices

Autistic Allies: not fixing autistics everywhere

Learn From Autistics

THINKING PERSON’S GUIDE TO AUTISM


Some books positive and proactive books written by pro-Neurodiverse positive people

10 Rules, Damian Milton

A mismatch of Salience, Damian Milton

Anthology, All the weight of our dreams

Neurotribes, Steve Silberman

The reason I jump, Naoki Higashida

Fall Down Seven Times, Get Up Eight: A young man’s voice from the silence of autism, Naoki Higashida

Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age, Sarah Hendrickx

Autism and Asperger Syndrome in Adults, Dr. Luke Beardon

Anthology, Bittersweet on the Autism Spectrum (Insider Intelligence)

The Guide to Good Mental Health on the Autism Spectrum, Contributions

Fingers in the Sparkle Jar, Chris Packham

The Autism Spectrum Guide to Sexuality and Relationships: Understand Yourself and Make Choices that are Right for You, Emma Goodall

It’s an Autism thing, Emma Dalmayne

An Insider’s guide to Asperger Syndrome, Ian Hale

Pretending to be Normal: Living with Asperger’s Syndrome (Autism Spectrum Disorder), Lianne Holliday Willey

Loud Hands: Autistic people speaking, Anthology

Authoring Autism, Melanie Yergeau

Difference Not Disorder: Understanding Autism Theory in Practice, Dr. Catherine Harvey

Naming Adult Autism: Culture, Science, Identity, James McGrath

Camouflage: The Hidden Lives of Autistic Women, Dr. Sarah Bargiela

The Parents’ Practical Guide to Resilience for Preteens and Teenagers on the Autism Spectrum, Dr. Emma Goodall, Jeanette Purkiss

Representing Autism: Culture, Narrative, Fascination, Stuart Murray

Worlds of Autism: Across the Spectrum of Neurological Difference, Joyce Davison

Understanding and Evaluating Autism Theory, Nick Chown

Nerdy, Shy, and Socially Inappropriate: A User Guide to an Asperger Life, Cynthia Kim

I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults, Cynthia Kim

Nobody Nowhere: The Remarkable Autobiography of an Autistic Girl, Donna Williams

Girls and Autism, Barry Carpenter

Re-Thinking Autism: Diagnosis, Identity and Equality, Katherine Runswick-Cole

Trauma, Stigma, and Autism: Developing Resilience and Loosening the Grip of Shame, Gordon Gates

The Nine Degrees of Autism: A Developmental Model for the Alignment and Reconciliation of Hidden Neurological Conditions, Phillip Wylie

Gender Identity, Sexuality and Autism: Voices from Across the Spectrum, Eva Mendes

Inclusive Education for Autistic Children: Helping Children and Young People to Learn and Flourish in the Classroom, Dr. Rebecca Wood

 

Book by Steve Silberman:
Steve Silberman is an award-winning science writer whose articles have appeared in Wired, the New York Times, the New Yorker, the Financial Times, the Boston Globe, the MIT Technology ReviewNatureSalonShambhala Sun, and many other publications. He is the author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity (Avery 2015), which Oliver Sacks called a “sweeping and penetrating history…presented with a rare sympathy and sensitivity.” The book became a widely-praised bestseller in the United States and the United Kingdom, and won the 2015 Samuel Johnson prize for non-fiction, a California Book Award, and a Books for a Better Life award. It was chosen as one of the Best Books of 2015 by The New York Times, The Economist, The Financial Times, The Boston Globe, The Independent, and many other publications, and is being translated into 15 languages.”

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity

Books by Katja Rowell MD and Jenny McGlothlin, M.S., CCC-SLP:
Katja Rowell MD is a family doctor and childhood feeding specialist. Described as “academic, but warm and down to earth,” she is a popular speaker and writer.

Jenny McGlothlin, M.S, CCC-SLP developed the STEPS feeding program at the UT Dallas Callier Center to support and promote feeding development in children and provides training for graduate students, therapists, teachers, and parents. More information may be found at Extreme Picky Eating Help.

Helping Your Child with Extreme Picky Eating: A Step-by-Step Guide for Overcoming Selective Eating, Food Aversion, and Feeding Disorders

Conquer Picky Eating for Teens and Adults: Activities and Strategies for Selective Eaters 1st Edition

Books by Mona Delahooke, PhD:
Mona Delahooke, PhD is a licensed clinical psychologist with more than 30 years of experience caring for children and their families. She is a senior faculty member of the Profectum Foundation, an organization dedicated to supporting families of neurodiverse children, adolescents and adults. She is a trainer for the Los Angeles County Department of Mental Health. Dr. Delahooke is a member of the American Psychological Association and holds the highest level of endorsement in the field of infant and toddler mental health in California, as a Reflective Practice Mentor (RPM). She is a frequent speaker, trainer, and consultant to parents, organizations, schools, and public agencies. Dr. Delahooke has dedicated her career to promoting compassionate, relationship-based, neurodevelopmental interventions for children with developmental, behavioral, emotional, and learning differences.”

Beyond Behaviors: Using Brain Science and Compassion to Understand and Solve Children’s Behavioral Challenges 1st Edition

Social and Emotional Development in Early Intervention

Books by Ross W. Greene, PhD: “Kids do well if they can.” 
Amazon: “Ross W. Green, PhD., is the originator of the empirically supported model of psychosocial treatment described in his influential books The Explosive Child, Lost at School, Lost & Found, and Raising Human Beings. Dr. Greene was on the faculty at Harvard Medical School for over 20 years, and is the founding director of the non-profit Lives in the Balance (livesinthebalance.org), which provides vast free resources on his CPS model and advocates on behalf of behaviorally challenging kids and their caregivers. He is on the faculty of the Department of Psychology at Virginia Tech and the University of Technology in Sydney, Australia. He and his colleagues at Lives in the Balance consult to families, schools, inpatient psychiatry units, and residential and juvenile detention facilities throughout the world.”

Explosive Child, The: A New Approach For Understanding And Parenting Easily Frustrated, Chronically Inflexible Children

Treating Explosive Kids: The Collaborative Problem-Solving Approach 1st Edition

Lost and Found: Helping Behaviorally Challenging Students (and, While You’re At It, All the Others) (J-B Ed: Reach and Teach) 1st Edition

Raising Human Beings: Creating a Collaborative Partnership with Your Child

Books by Julia Bascom:
Julia Bascom serves as Executive Director at the Autistic Self Advocacy Network and is an SLP Neurodiversity Collective Board Member. Julia is an autistic writer and activist who has served on the New Hampshire DD council, and is the founder of the Loud Hands Project. She writes about autistic identity, community, and language; disability rights; theory vs. praxis; and autism acceptance on her website, Just Stimming….

The Obsessive Joy of Autism

Loud Hands: Autistic People, Speaking

And Straight on Till Morning: Essays on Autism Acceptance

Therapist Neurodiversity Collective is a collective that believes that our therapy practices must contribute to a world in which autistic and other neurodivergent people equitable equal access, rights, and opportunities. We advocate neurodiversity, self-determination, dignity, respect of individual rights, sensory preferences, and the power to say “no”. Every member pledges to provide culturally competent, trauma-sensitive, empathetic care.


We believe that it is critical for us to really listen to autistic and other neurodivergent people, to be mentored, and to conduct our therapy practices accordingly. In no particular order, these are some of the neurodivergent educators, advocates, and activists, we follow on Facebook:

 

 

 

 

Autistic Self Advocacy Network

The Autistic Advocate

Autistic Allies

The Autistic Cooperative

NeuroClastic

Better Ways Than ABA

International Badass Activists

Thinking Persons Guide to Autism

Neurodivergent Rebel

ABA UK Autism Discussion

Autism and Neurodiversity in the classroom

Ed Wiley Autism Acceptance Lending Library

Kristy Forbes – Autism & Neurodiversity Support Specialist

Autistic Not Weird

Autistic Zebra

The Autistic Avenger

Actually Autistic

The Autistic OT

Autism Level UP

Autistic Women & Nonbinary Network

Âûtistic News Feed

Autistic Strategies Network

Autistic UK

Autistic Inclusive Meets Community Group AIM

Âû

Autistic On Wheels

Agony Autie

Ask An Autistic

It’s An Autism Thing.     I’ll Help You Understand It. By Emma Dalmayne

New Jersey Neurodiversity

Communication First

ABA Leaks

Ido Kedar

Autistics United Fort McMurray – Cree, Dene, Dane-zaa, & Métis Territory

Just Keep Stimming

Unbound Books Autism Acceptance Library

Canadian Autistics and Allies Against ABA

A4A: Public Page

The Neurodivergent Teacher

The “A” Team Justice League

Crimson Âû

Autistic Bride

AUsome Ireland

Threshold Neurodiversity Resources

NeuroDefiant

Autistics and Allies Against ABA Ireland

Ollibean

Operation Diversity

Erin Human

Amythest Schaber

Respectfully Connected

AUTCOM – The Autism National Committee

ABA AND PATIENTS’ RIGHTS:
Protect your loved ones and yourself from being subjected to the abuses of applied behavioral analysis (ABA) in the medical, rehab or skilled nursing setting:

Know the clinical background of anyone who is working with your loved one.  SLPs and other clinical staff who use ABA models, and BCBAs and ABA Techs work in

  • Acute care hospitals
  • Inpatient rehabilitation facilities and private care clinics
  • Traumatic Brain Injury clinics and facilities
  • Skilled Nursing Facilities


ABA is used to control and manipulate the behavior of patients with Traumatic Brain Injury, Post-stroke, Dementia, Alzheimer’s, Age-Related Depression, Anxiety and Challenging Behaviors.
The push for the use of ABA in medical settings is a strategic business model, financially incentivized by the ABA industry at the expense of human dignity and patient rights. 
Expanding the Consumer Base for Behavior-Analytic Services: Meeting the Needs of Consumers in the 21st Century
Leblanc, Linda A et al. “Expanding the consumer base for behavior-analytic services: meeting the needs of consumers in the 21st century.” Behavior analysis in practice vol. 5,1 (2012): 4-14. doi:10.1007/BF03391813

What you can do: Create a medical power of attorney and discuss your wishes with anyone who will be making medical decisions for you for how you wish to be treated if you should have a stroke, a TBI or be impacted with any cognitive injury. Address your wishes for swallowing and feeding therapy. Address your rights to refuse to participate in therapy which is disrespectful, manipulative or controlling. Put in your medical power of attorney whether or not you agree to be subjected to punishments and aversion therapy, including the withholding of foods, drinks, activities, and personal items in order to manipulate your behavior. The maximization of respect for patient autonomy and bodily integrity, rather than the imposition of the therapist’s professional values, is what the application of “informed consent” should endeavor to achieve.

Keep in mind that BCBAs and Behavior Techs pledge to treat all patients “consistent with the philosophical assumptions and principles of behavior analysis.” (Professional and Ethical Compliance Code for Behavior Analysts)

For more information: https://therapistndc.org/therapy/acquired-neurological-conditions/

© 2018, 2019, 2020 Therapist Neurodiversity Collective